This is Karen, I also dropped in around 11 to 11:45 today OR so, Carole looked awesome, much brighter than yesterday, and certainly more herself. Simply determined to go home and get all this stuff off her (the IV etc). I spent a bit of time explaining what needs to be considered for a return home, and having someone with her 24 hour/day, also about maybe considering Palliative Care downstairs as a support, she was much more receptive to all this and understands we are working on it. In order to be considered for home care through Manulife, we are having to provide them with a multitude of info (letters from the province, her doctor, a home care company etc) All this I am working on, however I must be honest,I have been in touch with 2 home care company's so far and a big problem is a nursing and or LPN shortage. Palliative Care mentioned something about that during the meeting on Friday that nursing shortage can be a big issue, and we need to make sure that we have a back up plan for all times. I have not told Carole all of this as yet, other than telling her about some of the hoops we are having to work our way through for this predetermination, but we will get there.
Just a few things for consideration for your Sunday planning session.
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Karen again, I just spent about 45 mins on the phone with Carole, she sounds much more her old self. Had a pretty good night, the evening nurse on last evening helped her have a bath, which eases some of the abdominal discomfort she feels. That and having the IV out for periods. This morning I kept her distracted while they had to put in a new IV for the antibiotics, we joked a little even. She is very determined to be going home and to prove the medical community wrong about her situation. She understands that for now we are continuing to make arrangements to have someone with her at all times, and as she gets back on her feet that can all possibly change. That has been my approach, for now we do as required from the medical side and as things improve change can happen. She seemed much more receptive to being followed by Palliative Care, that by being there she can go on pass and not lose her bed if it's needed, and they can help put in place some follow up for home.
She tells me she appreciates being informed of what is happening, and she appreciates being able to have her own input. She is adamant she is not going anywhere anytime soon, she will be home and will work to being able to be on her own in her own home. How awesome is that !
I went through this with my dad not too long ago. He wanted nothing more than to be at home escpecially around Christmas. So we arrange to take him home on weekends and had a pallative care person there for half days and family members the rest of the time. Doing this he was able to spend his last Christmas at home. Maybe you could look into this type of arrangement for Carole. Place an add in the local paper for a retired Nurse and see what comes from it.
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