The nurses are keeping Carole fairly sedated now as she is restless at times, and tries to get up a lot.
The visits can be tough as she is not very coherent, and does not always know who is in the room. There are moments of clarity, but for the most part, the conversations will not make a lot of sense.
They have the rails up on both sides of the bed to help with her trying to get out.
I believe that they have increased the pain meds as well, so I don't think she is in too much discomfort. Her main issue now seems to be that she often asks to go home, and that is tough to see.
Many thanks to those who have been sitting with Carole this past week.
When you get in to visit, please note the sign up sheet and put yourself in for a few hours if you can. People have written notes on the sheet as to how things are going each day.
Continue to think good thoughts.
Rodney
Tuesday, August 25, 2009
Friday, August 21, 2009
August 21 2009
Carole went back into the hospital last week.
7th floor, VG site, Palliative care, Room 99
She had been having trouble breathing and had been on oxygen at home for a couple of weeks or so. She was having swelling again as well. She was having a lot of pain, and the medication was making her drowsy as well.
I was in Wednesday at lunch, but she was sleeping. There was a family meeting Thursday night, and there is not much to tell really. It seems to be day to day at this point.
As before, she is very tired, and is cranky about the phone calls waking her, so arranging to visit is hard.
I am sure some times are better than others, but she can be confused and barely awake at times. Other times she is not so bad.
She is on quite a bit of pain medication, so this is understandable.
I am not sure if they are actually doing anything for her aside from trying to keep her comfortable.
Things do not look great, but we have said that before and she has proved us wrong and had some temporary recoveries.
It has been suggested that we try to have someone with her at all times.
Mario spent Wed night there, and Paul F is did the same Thur night.
We all have work and family commitments, but we are trying to organize
people to be able to stay with her over the next little while.
If you feel comfortable doing this, please email me and tell me when you would be available.
Or if you get down to the hospital, I believe there is going to be a notebook there so that people can pencil themselves in for times to stay with Carole.
Think good thoughts,
7th floor, VG site, Palliative care, Room 99
She had been having trouble breathing and had been on oxygen at home for a couple of weeks or so. She was having swelling again as well. She was having a lot of pain, and the medication was making her drowsy as well.
I was in Wednesday at lunch, but she was sleeping. There was a family meeting Thursday night, and there is not much to tell really. It seems to be day to day at this point.
As before, she is very tired, and is cranky about the phone calls waking her, so arranging to visit is hard.
I am sure some times are better than others, but she can be confused and barely awake at times. Other times she is not so bad.
She is on quite a bit of pain medication, so this is understandable.
I am not sure if they are actually doing anything for her aside from trying to keep her comfortable.
Things do not look great, but we have said that before and she has proved us wrong and had some temporary recoveries.
It has been suggested that we try to have someone with her at all times.
Mario spent Wed night there, and Paul F is did the same Thur night.
We all have work and family commitments, but we are trying to organize
people to be able to stay with her over the next little while.
If you feel comfortable doing this, please email me and tell me when you would be available.
Or if you get down to the hospital, I believe there is going to be a notebook there so that people can pencil themselves in for times to stay with Carole.
Think good thoughts,
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